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Book
Club - The Politics of Sickle Cell and Thalassaemia
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 The
Politics of Sickle Cell and Thalassaemia by Elizabeth N. Anionwu
and Karl Atkin... a most interesting, eye-opening and often challenging book... it should be read by anyone involved in dealing with haemoglobinopathies, in the health or social care setting. May others who are interested in the broader issues around chronic and particularly genetic disease will also find it stimulating reading. Dr Anne |
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Sickle cell disorders and thalassaemia are inherited blood disorders. Sickle cell disorder alters the shape of the red blood cells from their usual round appearance to something which resembles a sickle, or half moon. Those born with thalassaemia major are unable to make sufficient amount of haemoglobin. They will develop a fatal anaemia in early childhood if not treated with blood transfusion every four to six weeks, for life. Sickle cell disorders and thalassaemia are found mainly in families that come from Africa, South Asia, the Caribbean, the Eastern Mediterranean and the Middle East. There are estimated to be over 10,000 people with a sickle cell disorder (SCD) and around 600 cases of thalassaemia in the UK. Despite this high incidence, it is still an under-researched topic, and a subject about which health professionals and policy makes know very little. After years of neglect, it is now attracting policy interest and there are new moves to improve existing provision. Elizabeth N. Anionwu is Professor of Nursing and Head of the Mary Seacole Centre for Nursing Practice at Thames Valley University. Karl Atkin is Senior Lecturer at the Centre for Research in Primary Care, University of Leeds |
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